We are finally home! Konner was able to come home yesterday. He has been so good and really loves being home with his brothers. How do I know....... Because he told me duh! haha No im just kidding I know because he is full of smiles!!! He love being in his swing and guess what!? When I had to give him his shot today he DIDNT cry!!! Yeah I am so very proud of him. His brother are happy to have him and I back home. I am glad that we get to to be a family for a short time. Konner gets to go to the clinic tomorrow for his check up and to check his ANC levels. Then they will give us our next appointment and the date for his 2nd round of chemo. So far he is doing good with a couple of hours here and there where he gets sick. He is staying strong and is surely still a Tough lil' guy! He is my Lil Rock! Thank you all who look at Konner's blog and follow him. Thank you for all your prayers! Here are some pictures of the lil guy and his brothers!
Monday, April 26, 2010
Tuesday, April 13, 2010
from now on
Hi guys I have created a blog just for Konner. you can either click this link Konner's Korner or click on his picture on the side and that will take you to his blog. Thats where i'll be posting about Konner from now on. This will still be our family blog. But Konners Korner is specifically just about Konner. Thank you
The results
Hey everyone,
Konner was Diagnosed with Neuroblastoma. We are unsure what stage it is because we have alot of test to get done within the next days - weeks. The Neuro specialist will come and talk to us tomorrow. We are unable to tell you what the cure rate is until we have the other test done. Konner will need Chemo and he will undergo another surgery to have a cathiter placed in him for the treatment of Chemo. Please Please keep Konner in your prayers. He has a long road ahead of him and please pray that the cancer has not spread to his bones or bone marrow. Thank you Erin.
Konner was Diagnosed with Neuroblastoma. We are unsure what stage it is because we have alot of test to get done within the next days - weeks. The Neuro specialist will come and talk to us tomorrow. We are unable to tell you what the cure rate is until we have the other test done. Konner will need Chemo and he will undergo another surgery to have a cathiter placed in him for the treatment of Chemo. Please Please keep Konner in your prayers. He has a long road ahead of him and please pray that the cancer has not spread to his bones or bone marrow. Thank you Erin.
He's Awake!!!!!!!!!!!!!!!
Did you hear me!!!! He is awake and is doing great! He's a little puffy but that is to be expected and ready for the great news.......... He is off the ventilator!!!!!! He is our little champ! He still has alot of discharge but he will be able to clear it soon. Also we should have the results sometime soon. Here is a picture of our lil guy off of the breathing tube!!
Day 3......
( Post Surgery day 3)
So its day 3 for our little guy. He is doing good so far this morning. We should be getting the lab results back sometime soon. They are trying to wien him from his ventilator today. He started out with 24 b/pm and is now set and 20 b/pm. He is doing most of the breathing on his own but the ventillator does help at times. We are taking things slowly but they do want him off the ventilator by tonight. So we'll see how things go. Konner is down to 2 IV's from the 4 he had. One of his Artery lines are gone so that is great! He is also off most of the meds that they were giving him. He is on 1 pain med and on a normal drip. We hope to start feeding him tomorrow. They just want his stomach empty for when they take the ventilator out. He is doing good. And your prayers are working. Please Continue with them as we have a long road ahead of us. Thank you all.
Monday, April 12, 2010
Konners 2nd MRI Results............
His 2nd MRI results just came back. And im happy to say that Konner's tumor that was on and in his spinal cord is gone! You can see the empty space where it was and I cant believe he had something that big on his spine. Now our next step is to wait for the biopsy results to see what kind of tumor it is and how to proceed with treatment.
Our "lil Tough Guy" has had an eventful day. He has had some trouble breathing on his own but all the Dr's say that is expected after a major surgery. His ventilator is set back at 16 like it was earlier this morning so he wont have to work so hard to breath. For the most part of the day it was at 12 and he would do great at times but then he would drop down to 12 which basically means he wasn't breathing on his own and just got a little lazy. He had some trouble with his body temperature but we were able to get that back up. And his blood pressure is back to normal as well. Konner's is doing great right now and all I can ask of him is to stay strong and to just get better.
I love this lil guy like crazy and im so very thankful that he is mine. I cant wait to see his beautiful eyes and that cute adorable lil smile again.
Our "lil Tough Guy" has had an eventful day. He has had some trouble breathing on his own but all the Dr's say that is expected after a major surgery. His ventilator is set back at 16 like it was earlier this morning so he wont have to work so hard to breath. For the most part of the day it was at 12 and he would do great at times but then he would drop down to 12 which basically means he wasn't breathing on his own and just got a little lazy. He had some trouble with his body temperature but we were able to get that back up. And his blood pressure is back to normal as well. Konner's is doing great right now and all I can ask of him is to stay strong and to just get better.
I love this lil guy like crazy and im so very thankful that he is mine. I cant wait to see his beautiful eyes and that cute adorable lil smile again.
One Day At A Time
That is my new motto! This Morning I talked to Konners Dr for a bit. He said he looks pretty good. He also said that last night Konner had a little gasp for air but that all in all he seemed to be doing good. Konners Blood pressure has been giving us problems and that is because he had alot of fluid build up in his chest. They stop all his fluids for now. They were also able to get all the fluid build up out. They started him on a medicine that makes him pee more and so that will help him drain more of the fluid intake. things are alright today and he is scheduled for another MRI this afternoon. I will post again tonight.
Right now my surroundings consist of Lots and lots of dr's, nurses and just nice people going through the same if not worse situations as I am. Lots of different alarms from all the machines and constant dings.
I currently miss snuggling with my lil man and honestly changing his diapers and the closeness of the feedings. I have realized now how much I have taken for granted. I thought before that I was cherishing every moment with Konner because he was my last baby. But You really dont cherish anything till its about to be pulled out of your arms and you no longer can do all the things you did before. So I say to you now and always. PLEASE CHERISH ALL THE MOMENTS BOTH BIG AND LITTLE CAUSE YOU NEVER KNOW WHEN THEY WONT BE THERE ANYMORE. I do have faith in my Heavenly Father that I will again someday be able to hold and cuddle with my baby. Right now he just needs to get better. But it is the hardest thing in the world to not be able to hold him and look into his beautiful blue eyes and let him know that things will be ok.
( I do appreciate all the prayers and support from family and friends. Please do feel free to put his name in at the Temples and church prayer lists.)
Right now my surroundings consist of Lots and lots of dr's, nurses and just nice people going through the same if not worse situations as I am. Lots of different alarms from all the machines and constant dings.
I currently miss snuggling with my lil man and honestly changing his diapers and the closeness of the feedings. I have realized now how much I have taken for granted. I thought before that I was cherishing every moment with Konner because he was my last baby. But You really dont cherish anything till its about to be pulled out of your arms and you no longer can do all the things you did before. So I say to you now and always. PLEASE CHERISH ALL THE MOMENTS BOTH BIG AND LITTLE CAUSE YOU NEVER KNOW WHEN THEY WONT BE THERE ANYMORE. I do have faith in my Heavenly Father that I will again someday be able to hold and cuddle with my baby. Right now he just needs to get better. But it is the hardest thing in the world to not be able to hold him and look into his beautiful blue eyes and let him know that things will be ok.
( I do appreciate all the prayers and support from family and friends. Please do feel free to put his name in at the Temples and church prayer lists.)
(Post surgery day 2)
Sunday, April 11, 2010
Update on Konner.
(Below this post r pictures of Konner post surgery do not look if you are not wanting to see a bunch of tubes.)
So today our little fighter had 1 successful surgery and one that wasn't. His first Surgery started this morning at 7:40. Dr. David Adelson was going to go in through his back and try and remove the full tumor from his spine. He said once he opened up Konners back that the Tumor was actually outside of Konners spine and just a little bit of the tumor had gone into his spine. That for us was great news alone! He was able to fully remove the tumor from Konners back without no known problems. That surgery was done at 11:00 and then it was Dr. Acosta's turn. He went in through Konners abdomen, That was done around 2. He said that once he got in and shifted everything over that he noticed the tumor was actually attached to 5 nerve endings. So it was not a free standing tumor like we thought. Therefore he had to stop the surgery and sew Konner up which made it an unsuccessful surgery. They will not be able to do any further treatment on that tumor till the Biopsy results come in sometime next week. At that time the tumor specialist will come in and talk to us about what kind of tumor it is and whether it is Neuroblastoma. Right now that is what they are leaning towards and if that is the case then they will start Chemo as soon as our lil guy is healed from his surgery.
Konner right now is still asleep and he will most likely stay that way till sometime tomorrow. He is still on a breathing machine and has lots of IV's to monitor his breathing and just about everything else. Konner is under some of the best care the state of AZ has to offer. And he has been since he was born. Its hard to believe that our little guy is only 57 days old and is already going through so much. I know that with all the prayers and with Faith in Heavenly father that he will overcome this illness.
Dr. David Adelson is one of the best Neurosurgeons. You can Google him as did I and you will know how blessed we feel to have him operating on our son.
Dr. Acosta is also a Great surgeon. He did an amazing job and was great to work with.
Dr. Haper Price was Konners Dermatologist and she was the one who sent him in for the ultrasound and because of her we found the mass.
A HUGE thank you to our wonderful Pediatrician Dr. Allison Wilcock. Because of her we would not be where we are today. We would never have known that Konner has a tumor and possible cancer.
Also Thank You to all the specialist and everyone on Konners medical team.
We thank you all for your prayers and continued support through this hard time. And we Thank all the Dr's who have come in contact with Konner. Thank You thank You thank YOu
"Lil Tough Guy"
Thats what we are calling Konner.
On Monday April 5, 2010 Konner had an ultrasound done and the test results came back that he had a mass in his abdomen that was pushing on his kidney. So the Dr. order am MRI to be done stat (fast). We brought Konner to Phoenix Childrens Hospital on Friday at noon to have his MRI done. They said that it would take about 45 minutes to an hour and a half and then we would be able to go home later on after he woke up from the anesthesia. Well while he was getting the MRI done his dr's came to talk to Kyle and I. They told us that he had a tumor on his spine that also extended to his abdomen and was pushing his spine to the left and was pushing on his kidney as well. This Tumor we do not know what it is yet. They have all said it has the characteristics of Nueroblastoma. That is a type of Childhood cancer which mostly effects kids ages 3-infancy.
Konner was admitted to PCH and this morning he went into Surgery to have this tumor removed. They are going to try and remove as much of the tumor as possible. He has a great team of Dr's and they are all optimistic about it. Konner does have a long road ahead of him but with all the prayers and Hope and Faith We know he can get through this. He is our Lil' Tough Guy, Peanut, fighter, brother, son, grandson, nephew! We love him Dearly and we ask that you all keep him in your prayers.
I will keep you all updated through our blog as this is better for me to get everything out. Thank you All
Saturday, April 3, 2010
Finally HOME
Thats right guys Kyle is finally home and we couldnt be happier!! He flew in Thursday April 1st and we got to see him march right into the armory. It was the best sight since having Konner! I automatically started crying. I was overwhelmed with soo many emotions. I was glad it was finally over and I knew that we would no longer have to endure another deployment. We did make the news both 5 o'clock and 10. Fox 10 news came to our house on thursday night to talk to us a little more. The Lady asked us if we had to do it all over again would we?! Kyle and I both looked at each other and our first response was no. Kyle joined the army in order to get his schooling paid for. I know thats not the patriotic way but that was our reason for it. Anyways after thinking about it the army has done some good for us. so its a love hate relationship we decided. our reason for that is, although we hate that he has been deployed and seperated from us for so long it has made us a STRONGER family for sure. We always come back with a better appreciation for each other. So War can either make or break you as a couple. Some arent so fortunate and are selfish during this time. I love my husband more then anything and am so appreciative of him and all he has done this past year. We have grown individually and as a couple. I love not having to see him over skype and I love that when I talk to him there is no static. I love that our calls dont get dropped and if I need him he is right here by me. I love waking up to him again and having him kiss me good bye in the mornings! I love that he plays with our boys constantly even though its probably overwhelming and I know he is tired. Im thankful that he is home safe! and Im thankful that he was able to fight for our freedom. He is such a great role model for our kids. He is my husband and I love him!! I do have pictures from thursday and as soon as I download them to my computer I will post them.!! Sorry for the 3 page letter lol. Hope you guys all have a HAPPY EASTER I know I WILL!
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